Blog
Beans, Lentils, and Beyond: Essential Nutrition Insights for Hemophilia Patients
Today on Beyond the Bleeds, Heather and John welcome Jill Larson, a nutritionist with the comprehensive care team at the Hemophilia Outreach Center in Green Bay. In this episode, Jill shares her invaluable...
Facing Fears and Finding Friendship at Camp Klotty Pine with Alyssa, Eliot, and Elias Myrie
Today on Beyond the Bleeds, we welcome the Myrie family—Alyssa, Elias, and Eliot—to discuss their experiences at Camp Klotty Pine. Set in Wisconsin, this unique summer camp caters to children with bleeding disorders. It offers them a safe space to enjoy traditional camp activities like swimming, archery, and fishing while providing essential education on managing their conditions. Alyssa, Elias, and Elliot share their heartwarming stories, from overcoming homesickness to forming lifelong friendships with others with similar bleeding disorders.
Dental Hygiene Challenges and Solutions for the Bleeding Disorders Community with Bonnie Des Jardins
Today on Beyond the Bleeds, we welcomed Bonnie Des Jardins, a registered dental hygienist in Green Bay, Wisconsin. Bonnie shares her insights on the critical connection between oral and systemic health. She sheds light on the unique challenges and necessary precautions for dental care within the bleeding disorders community
Building the Foundation of Hemophilia Care in Green Bay with Co-Founder Peggy Maier
Today on Beyond the Bleeds, John and I welcome Peggy Maier, an extraordinary nurse and co-founder of the Hemophilia Outreach Center (HOC) in Green Bay, Wisconsin. We delve into Peggy’s inspirational journey, the founding of HOC, and her undying commitment to helping those with bleeding disorders.
From Parent to CEO: Jamison Buxton’s Hemophilia Journey and Leadership
Today on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders.
Welcome to Beyond the Bleeds
Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you're...
Latest Advances in Bleeding Disorder Research
Innovative Treatments on the Horizon Bleeding disorders, which impair the body’s ability to clot blood, have long posed significant challenges for both patients and healthcare providers. Advances in bleeding...
2025 Open Enrollment
Open Enrollment Season is approaching again! There are a few questions you need to ask when choosing an insurance plan if you or a family member have a bleeding disorder diagnosis. How do you get your...
Coping with Bleeding Disorders: Practical Lifestyle Tips for Daily Management
Understanding Bleeding Disorders What Are Bleeding Disorders?Bleeding disorders are a group of conditions that affect the way your blood normally clots. These disorders can lead to prolonged bleeding after an...
Staying Active with Bleeding Disorders: Safe Exercises and Physical Activities
Understanding the Importance of Physical Activity Benefits of Exercise for Bleeding DisordersPhysical activity is essential for maintaining overall health, but it plays a particularly important role for...
Menorrhagia: Exploring Effective Medical Treatments
Menorrhagia, or heavy menstrual bleeding, is a common condition that affects many people who menstruate, causing significant physical and emotional distress. Understanding the effective medical treatments...
Addressing HHT Disease: Current Treatments and Innovations
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, is a genetic disorder that affects blood vessels. People with HHT often develop abnormal blood vessels called...
Welcome to Beyond the Bleeds
Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you're...
Glanzmann Thrombasthenia: New Horizons in Treatment
Glanzmann Thrombasthenia (GT) is a rare genetic bleeding disorder characterized by the inability of platelets to properly form blood clots, leading to prolonged bleeding episodes. Fortunately, recent...
Finding the Best Hemophilia Center for Your Needs
Choosing the right hemophilia center is crucial for effective management and treatment of bleeding disorders. A specialized center provides comprehensive care tailored to meet the unique needs of individuals...
First Michigan Resident Dosed with HEMGENIX in Green Bay
PETOSKEY, MI- Petoskey resident with Hemophilia B is the first patient in the state to receive gene therapy, HEMGENIX, since FDA approval. “With this treatment and the promise of actually feeling even just a...
HEMGENIX Has Been Administered Across The U.S.
Administered in Green BayHEMGENIX is revolutionizing treatment with its groundbreaking one-time infusion that offers elevated and sustained factor IX levels for years. Approved by the FDA in 2022, HEMGENIX...
Comprehensive Care at Hemophilia Treatment Centers
Hemophilia is a complex bleeding disorder requiring specialized management to maintain a high quality of life. Hemophilia treatment centers (HTCs) offer a...
Advanced Treatments for Von Willebrand’s Disease
Understanding Von Willebrand Disease Von Willebrand Disease (vWD) is one of the most common hereditary bleeding disorders, affecting both men and women equally. It occurs due to a deficiency or dysfunction of...
Green Bay resident to become first Wisconsinite to receive gene therapy treatment for hemophilia A
GREEN BAY, WI- Green Bay resident with Hemophilia A is the first patient in the state to receive gene therapy, Roctavian, since FDA approval. “It is just exciting to know how far medicine has come. I never...
Finding the Right Hemophilia Treatment Center Near You
For individuals and families navigating the complexities of hemophilia and other bleeding disorder diagnoses, finding a treatment center that offers comprehensive, personalized care is paramount. This...
Glanzmann Thrombasthenia: Understanding Your Treatment Options
Glanzmann Thrombasthenia is a rare bleeding disorder that necessitates a nuanced approach to care and management. This detailed guide not only elucidates treatment strategies but also underscores the...
Effective Strategies for Menorrhagia and Heavy Menstrual Bleeding: A Deeper Dive
Menorrhagia, commonly known as heavy menstrual bleeding, is a condition that poses a significant challenge to the well-being of many women, girls, and people who have or had the potential to menstruate or...
Introduction to “HHT Treatment: What You Need to Know”
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu disease, is a genetic disorder that affects blood vessels and can lead to significant health issues. Understanding the current...
Understanding and Managing Von Willebrand Disease
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder, affecting both men and women. Despite its prevalence, myths and uncertainties surround its management and impact on daily life....
Navigating Medical Treatment for Hemophilia: A Comprehensive Guide
Hemophilia, a rare but significant bleeding disorder, requires nuanced understanding and specialized care. This guide, leveraging insights from the Hemophilia Outreach Center (HOC) and current medical...
Aging and Bleeding Disorders
As our bleeding disorder population’s life expectancy continues to rise to that of the average American, our patients need to understand that they are at risk for the...
First Ever Hemophilia Patient to Receive Gene Therapy Since FDA Approval
FIRST EVER HEMOPHILIA PATIENT TO RECEIVE GENE THERAPY SINCE FDA APPROVAL FOR IMMEDIATE RELEASE JUNE 20, 2023 GREEN BAY, WI- Wisconsin resident is the first ever hemophilia B patient to receive gene therapy...
Every Meal, Every Snack, Have a Plant!
Take good care of yourself when away from home whether on the road, at work or at school. Why? Current evidence suggests that eating more vegetables, fruit, beans, legumes, seeds and nuts will reduce...
Roctavian Gene Therapy Update
FDA approves first gene therapy for hemophilia B
On November 22, 2022, the FDA approved Hemgenix®, an adeno-associated virus vector-based gene therapy indicated for the treatment of adults with Hemophilia B (congenital Factor IX deficiency) who: Currently...
One Dozen ESSENTIAL Tips for College Students
Get a reusable water bottle for both hot and cold beverages. We often get dehydrated, and this can make us feel fatigued. You can flavor water with flavor drops or fruit slices. Fill the bottle with sparkling...
The Intriguing World of Microbiota
Diet, Microbes, and Your Health In celebration National Nutrition Month, the Hemophilia Outreach Center’s Nutritionist, Jill, would like to share an informative presentation discussing how Microbes (certain...
Improving Your Motivation During the Winter Months By: Joe Hoelscher, MSW, LCSW, SAC
We all can experience the feeling. It is the dark of winter, bitter cold outdoors, dark mornings, and you want to stay buried in the comfort of your bed. We experience more tiredness and having less gas in...
Managing Seasonal Affective Disorder (Winter Blues) By: HOC Behavioral Health Specialist Joe Hoelscher
Seasonal Affective Disorder (SAD), also commonly referred to as the “Winter Blues”, is real and affects many people during the long winter months. SAD can negatively impact a person’s mental health and have...
Holiday Mindset Shift | HOC
Once again, the holidays are upon us and for many, 2021 will mark two years since we’ve gathered with those we love to celebrate the season. And since we’ve had some time away from it all, this holiday...
HealthMonitor: Hemophilia A edition ft. HOC Nurse Coordinator Andrea Miller
Strategies to boost patient confidence and resilience- by Leah Black Living with Hemophilia A can be overwhelming for patients and their families. Not only is it a serious disease that can lead to...
Healthy Fall Soup Swaps By: Vanessa, HOC Nutritionist
It’s Fall, Y’all! Sweater weather has arrived and along with football games and falling leaves, this happens to be a great time of year to reassess our day-to-day nutrition. Since fresh produce...
HOC Insurance 101 Series- Part 2
More Fun Insurance 101! Last time we discussed some of the common terms associated with insurance coverages. Let’s start Part II looking at the different sources of healthcare coverage...
HOC-The Tree
The Hemophilia Outreach Center (HOC) is a family-oriented organization committed to providing the highest quality, comprehensive medical care and advocacy for individuals with a bleeding disorder. Our...
Veggies, Veggies, Veggies! By HOC Nutritionist, Vanessa Hamilton
Did you know eating a diet high in vegetables is one of the best ways to prevent chronic disease and maintain a healthy weight? High vegetable consumption can lower blood pressure, reduce the risk of heart...
College Prep Checklist
Are you or your child getting ready to head off to college? It’s an exciting time but as someone with a bleeding disorder, there are things that need to be considered and planned for as you make this new...
HOC Insurance 101 Series- Part 1
The topic of health insurance causes eyes to glaze over and brains to overload. However, it is an essential piece of the puzzle regarding your health. Health care can be quite costly, especially when living...
Wet That Whistle!
All of us have heard that we should “drink more water”, but why exactly is it so important? For all of us big or small, our bodies are made largely of water. Every cell, tissue and organ need water in order...
June- Hereditary Hemorrhagic Telangiectasia (HHT) Awareness Month
HOC is excited to announce that we are now serving a new population within the bleeding disorders community. And June is HHT Awareness Month! Hereditary Hemorrhagic Telangiectasia (HHT) or Osler-Weber-Rendu...
Just A Bruise?
The HOC nursing team often hears from patients struggling to tell the difference between a bruise and a bleed that might require treatment. It’s true that people without bleeding disorders can bruise easily...
Foam Rolling by Shanie Williams
Foam rolling is a type of self massage (myofascial release) that uses a device to provide direct compression that helps release tension in the muscles, relieve muscle soreness and improve flexibility and...
Women Can Bleed Too
Before I became a patient of HOC, I thought I knew a lot about hemophilia. I have a brother and extended family that suffer with the bleeding disorder. It broke my heart to see my brother suffer...
May-Mental Health Awareness Month by Joe Hoelscher
May is Mental Health Awareness Month which serves as a reminder of how important it is to take care of your mental health. For anyone suffering from anxiety, depression, substance abuse, or just general...
“Just a Carrier” by Jenna
My name is Jenna Stadler. I am a carrier of Hemophilia A. As a child, I always knew it was a potential that I was a carrier of a bleeding disorder because my mother’s biological father was a severe A...
Book Your Appointment Today
If you or a loved one is living with a bleeding disorder, reach out to HOC for personalized care that goes beyond clinical treatment. Our team of experts will work with you to develop a comprehensive care plan that addresses your unique needs and helps you live your best life.