June 1, 2021

June- Hereditary Hemorrhagic Telangiectasia (HHT) Awareness Month

HOC is excited to announce that we are now serving a new population within the bleeding disorders community. And June is HHT Awareness Month! Hereditary Hemorrhagic Telangiectasia (HHT) or Osler-Weber-Rendu disorder is a genetic disorder in which blood vessels don’t form properly. Typically, blood is pumped out of a person’s heart into arteries to travel to the rest of the body. This blood then passes through capillaries and into veins to be returned to the heart. People with HHT may be missing some of these capillaries, which can put too much pressure on the veins and lead to bleeding that can affect multiple organs in the body.

The most common symptom of HHT is epistaxis (nosebleeds). This disorder is frequently undiagnosed. Because of the way the disorder is passed from parent to child, a child of a parent with HHT, whether a boy or a girl, has a 50% chance of inheriting the disorder.

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