In this special episode of Beyond the Bleeds, Heather and John take bleeding disorder awareness beyond the clinic and into the community. From downtown Green Bay to St. Norbert College in De Pere, Wisconsin, they hit the streets to ask everyday people what they know...
General
Everyday Challenges of Living with HSD and EDS with Andrea Buxton and Brightyn Handrich
Today on Beyond the Bleeds, we’re joined by Andrea Buxton, nurse practitioner, and Brightyn Handrich, physical therapist, to discuss hypermobility spectrum disorder (HSD) and Ehlers-Danlos syndrome (EDS) and how these conditions can intersect with bleeding symptoms....
Healing and Advocacy Through the Stitches Doll Project, Part 2 with Kathleen Gerus-Darbison
Today on Beyond the Bleeds, we're again joined by Kathleen Gerus-Darbison, sociology professor and founder of the Stitches Doll Project, as John and Heather continue their conversation about the impact of storytelling, creative expression, and community. Kathleen...
Healing and Advocacy Through the Stitches Doll Project, Part 1 with Kathleen Gerus-Darbison
In this episode of Beyond the Bleeds, John and Heather talk with Kathleen Gerus-Darbison, a sociology professor and founder of the Stitches Doll Project, about love, loss, advocacy, and the power of storytelling in the bleeding disorders community. Kathleen shares her...
Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part 2
In Part 2 of this Beyond the Bleeds series, John and Heather continue their conversation with Matthew Barkdull, Clinical Supervisor at The Center for Change, exploring how hemophilia treatment, advocacy, and awareness have evolved over time. Matthew shares stories of...
Understanding Hemophilia Through History and Lived Experience with Matthew Barkdull Part I
In this episode of Beyond the Bleeds, John and Heather talk with Matthew Barkdull, a Clinical Supervisor at The Center for Change, about the history of hemophilia. Matthew talks about how he learned more about hemophilia after being diagnosed with a severe form of the...
Have You Thought About Fiber Lately?
You may have thought about many aspects of your health such as sunscreen, protein, or exercise but one essential nutrient remains grossly underappreciated: dietary fiber. Fiber doesn’t come with flashy marketing or miracle claims, yet its impact on human health is...
Navigating Emotions After a Hemophilia Diagnosis with Donna Varney and Maria Bularz
In this episode of Beyond the Bleeds, we talk with Donna Varney and her daughter, Maria Bularz, about navigating emotions after a bleeding disorder diagnosis. They share their experiences as a parent, sibling, and mother raising children with hemophilia. Donna talks...
Common Misconceptions About Bleeding Disorders with Andrea Buxton and Sumedha Ghate
Today on Beyond the Bleeds, we sit down with Sumedha Ghate, a genetic counselor at HOC, and Andrea Buxton, HOC’s nurse practitioner and clinical director, to break down some of the most common misconceptions about bleeding disorders. From the belief that someone with...
Real Family Perspectives on Treating Bleeding Disorders with Inhibitors with Andrea Buxton & Kristy Schiffer Part II
Today on Beyond the Bleeds, we're again joined by Andrea Buxton and Kristy Schiffer for part two of this heartfelt exploration of family life with a child facing an inhibitor diagnosis. Together, we dive deep into the emotional and practical realities of daily...
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