Our Mission

The Hemophilia Outreach Center is a family-oriented organization committed to providing the highest quality, comprehensive medical care and advocacy for individuals with a bleeding disorder. We create educational programs and outreach initiatives that enrich the lives of our patients and their caregivers.

 

Our services

Our Services

 

Center of Excellence

As a Center of Excellence, HOC has established a deep understanding for the bleeding disorder community’s needs. Our collaborative approach allows us to provide world class expertise, delivered through a comprehensive care model, increasing the likelihood of desired healthcare outcomes.

We are continuously evaluating and improving our standards of care.  Quality Improvement (QI) projects are used as a tool in order to measure success within specific areas of care.  Areas of focus are: Transitioning to Independence (age 12-22), Patient & Family Engagement & Medical Homes.

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Outreach

We understand that education about bleeding disorders goes beyond educating the patient and their immediate family. We provide in-services that empower other caregivers in a patient’s life with easy to understand information about bleeding disorders.

We provide community education to local hospitals and nursing colleges extending our commitment to the bleeding disorder community beyond our clinic.

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Events

We are committed to creating and implementing programs that educate, empower, and enrich the bleeding disorders community.

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Community Testimonials

"Everyone at the Center is incredibly caring, compassionate, knowledgeable and makes for seamless care between other offices and hospitals. We feel very blessed to have such a great group so close to us to help us navigate the ins and outs of having a child with hemophilia." - Gail K.

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Our Process

Step 1: Symptoms

Individuals with concerns of excessive or prolonged bleeding should consult their primary care physician so that a formal diagnosis can be made. The Hemophilia Outreach Center is willing to facilitate this process. Symptoms of a bleeding disorder may include one or more of the following: excessive or prolonged bleeding, nose bleeds, easy bruising, heavy menstrual bleeding, soft tissue/muscle bleed, joint bleeds, post surgical/ post dental bleeding, and/or extended bleeding after minor cuts or vaccinations. Primary care providers (PCP) can consult with the Hemophilia Outreach Center regarding specific lab draws to test for possible bleeding disorders.

Step 2: Diagnosis

Based on bleeding symptoms and testing through the primary care provider (PCP) a formal diagnosis can be made. Once a formal diagnosis has been determined, the Hemophilia Outreach Center takes an active role in the patient’s care. Individuals and/or their primary care provider (PCP) can consult with the Hemophilia Outreach Center regarding specific lab draw results to determine a formal diagnosis.

Step 3: Establish

Welcome to the Hemophilia Outreach Center (HOC)! Once a formal diagnosis is determined, care can be established at the HOC. Individuals or a primary care provider (PCP) can contact the Hemophilia Outreach Center to establish care. Medical records regarding an individual's bleeding history are necessary to assist our medical team in developing a plan of care. Our comprehensive care model is a coordinated, preventative approach that cares for all of the patient’s needs, beyond the medical and physical ones. Each individual on HOC’s comprehensive care team, plays a vital role in patient care.

Step 4: Treatments

There are many treatment options available to the bleeding disorder community. It can be overwhelming to pick a medication that best suits your needs and lifestyle. Our medical team is here every step of the way to educate patients about the various products available. We will help to determine the best treatment option in order to maximize a patient’s quality of life. Further testing may be needed in order to determine the effectiveness of some treatment options. Treatments for individuals with a bleeding disorder are evolving rapidly. Our medical team makes being informed on the latest treatments and therapies a priority. Our medical team is always available and willing to discuss questions about new and emerging therapies.

Step 5: Living with a Bleeding Disorder

The Hemophilia Outreach Center is here to help patients navigate unanticipated scenarios that come with living with a bleeding disorder. Our comprehensive care model services all of the patients needs, beyond medical and physical ones. Each discipline plays a vital role in a patient’s ability to live life to the fullest. Our nursing staff is available 24/7 to help navigate emergent situations. An active lifestyle is possible, necessary and encouraged for individuals with a bleeding disorder. Our healthcare team will help to provide direction on how to stay active, safely. YOU ARE NOT ALONE! The Hemophilia Outreach Center provides patients with several opportunities to meet other individuals in the bleeding disorders community. We believe that it is critical to meet others who can relate to the struggles that come with living with a bleeding disorder.

Step 6: Independence at Home

The Hemophilia Outreach Center is committed to providing patients with all of the tools needed to manage their bleeding disorder, independently. Our goal is to help patients understand their formal diagnosis and the importance of treatment. We aim to empower each individual to become their own best advocate. We believe it is imperative that each patient is able to communicate information specific to their bleeding disorder and treatments to other medical providers, insurance companies, etc. If at-home infusions (giving clotting factor medication through an IV) are necessary, the Hemophilia Outreach Center offers multiple educational opportunities to train the patient and their caregivers. As a result of education and training, patients are able to be more independent in their care.

Latest News

HOC will be closed for Thanksgiving on November 25th and 26th, 2021

We will resume normal hours on Monday, November 29th. Please plan ahead for your clotting factor needs.
 
For your convenience HOC offers 24/7 on-call coverage.