Outreach and Community Programs
HOC participates in multiple initiatives that advocate for the needs and interests of the bleeding disorders community. It is important that the members of the bleeding disorders community be involved in advocacy initiatives because nobody can capture the unique circumstances of a patient’s story better than the patients themselves.
Being that dental concerns are common in the bleeding disorders community, HOC’s dental hygienist developed a partnership with NWTC’s Dental Program. This is an opportunity for individuals with a bleeding disorder to receive a FREE dental cleaning.
We know that education about bleeding disorders goes beyond informing the patient’s immediate family. In-services are a great avenue to empower and share resources with teachers and other caregivers in order to navigate having a student with a bleeding disorder.
The Hemophilia Outreach Center welcomes every opportunity to educate other healthcare professionals about bleeding disorders and the experiences they may face when caring for a patient with a diagnosis or bleeding symptoms.
This is an educational program for individuals with a bleeding disorder between ages 7-22. It’s an opportunity to educate patients and families about how to self-infuse. This program will also give patients and families the opportunity to practice their infusion skills with a hemophilia treatment center nurse present.
Calling all Sophomores-Seniors and college students who like free money! Learn about the resources and information needed to take advantage of the educational and scholarship opportunities available to the bleeding disorders community.
Throughout the year, HOC collects information from the bleeding disorders community in order to determine educational needs and how we can fill them. Community Nights are an opportunity for social connections and consuming valuable information that is specific to bleeding disorders.
Physical activity is important for everyone, especially for individuals with a bleeding disorder. HOC provides the bleeding disorders community with opportunities to participate in sports, such as golf, that are defined as “safe sports” by the National Hemophilia Foundation.
Fitness Reimbursement Program
Proper and adequate amounts of physical fitness leads to better health outcomes for all individuals. In the past, the HOC has offered yoga and other fitness programs here at the Center. We know that for many people getting to Green Bay for fitness programming may not always be feasible. Therefore, we want to give all patients the opportunity to engage in physical fitness routines, in the area in which they live.
Each year we create a program that promotes women’s self-advocacy, education specific to women’s bleeding issues and concerns, and promotes the overall health of women in the bleeding disorders community.
Educational conferences are full of interesting sessions and networking activities for all members of the bleeding disorders community. Everyone is able to find something that sparks their interest. Individuals and families can find sessions on nearly every aspect of living with a bleeding disorder, from basics of a diagnosis to the latest treatment options.
Bleeding Disorders Camp
The goal of Camp is to enrich the lives of individuals with a bleeding disorder, ages 7-15, through inclusion, empowerment, and the development of knowledge and life skills that lead to living independently.
The Mentoring program provides a safe environment for young individuals (Ages 6+) with bleeding disorders to utilize peers within the community as role models.
Our Mom-to-Mom program is a support group that is specifically designed for mothers who have a child with a bleeding disorder.
Men's Pre-Prophylaxis Group
This group is for men in the generation before Prophylaxis was a standard of care. Our goal is to provide a healthy environment to share similar experiences and discuss topics such as joint damage and limited range of motion from treating bleeds on demand.
Our job is to create and implement programs that are beneficial to the bleeding disorders community. We welcome opportunities to partner with other organizations that may have resources to offer individuals and families living with a bleeding disorder.
How We Can Assist You in Your Bleeding Disorder Journey
Through our comprehensive care and a wide range of health services for bleeding disorders, we empower our patients to live full and meaningful lives. Learn more about our services and how we can assist you in your hemophilia journey.