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Today on Beyond the Bleeds, we welcome the Myrie family—Alyssa, Elias, and Eliot—to discuss their experiences at Camp Klotty Pine. Set in Wisconsin, this unique summer camp caters to children with bleeding disorders. It offers them a safe space to enjoy traditional camp activities like swimming, archery, and fishing while providing essential education on managing their conditions. Alyssa, Elias, and Eliot share their heartwarming stories, from overcoming homesickness to forming lifelong friendships with others with similar bleeding disorders.
Alyssa Myrie is a devoted mother whose two sons, Elias and Eliot, attend Camp Klotty Pine. With years of experience managing her children’s bleeding disorders, Alyssa brings a rich perspective on the challenges and triumphs of parenting in such unique circumstances. Her insights are invaluable for other parents contemplating sending their children to bleeding disorder-specific camps.
“Don’t let your fear hold your kids back from
experiencing something amazing.” – Alyssa Myrie
Today on Beyond the Bleeds:
- Camp Klotty Pine is an overnight camp for children with bleeding disorders. It offers both fun activities and medical education.
- The camp runs for a week and welcomes children from age seven to age 15. It offers the opportunity to become leaders in training.
- Elias and Eliot initially felt homesick but soon thrived by making friends who understood their unique challenges.
- The “big stick” ceremony rewards campers who infuse themselves, promoting independence in their medical care.
- Alyssa found the first year difficult as a parent but now sees the camp as a safe and enriching environment for her children.
- Activities like the ABCs (archery, fishing, sports) and the talent show were highlighted as significant and enjoyable parts of the camp.
- Both boys plan to return to camp and become leaders in training, inspired to help other kids in a similar situation.
- Alyssa advises other parents to ask questions and not let their fears prevent their children from gaining this valuable experience.
Resources Mentioned:
Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?
Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.
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