Podcast: Download
Today on Beyond the Bleeds, Heather is joined by guest co-host Erica and HOC Nurse Coordinator Tricia Delaney for a timely conversation about preparing for college with a bleeding disorder. Using HOC’s College Prep Checklist as a guide, Tricia shares practical advice to help students confidently transition to campus life while staying on top of their health and treatment.
The discussion covers everything from establishing infusion routines and ordering factor independently to connecting with campus health services, disability offices, and your Hemophilia Treatment Center. Tricia also explains why planning ahead, communicating with roommates and resident advisors, and creating an individualized health plan can make a significant difference if an emergency arises.
Heather, Erica, and Tricia also talk about the importance of building independence before arriving on campus. From learning to manage medications and supplies to knowing where to seek care away from home, they offer practical tips that help students feel prepared while giving caregivers greater peace of mind.
Whether you’re heading off to college for the first time, supporting a student through the transition, or simply looking for ways to build confidence and independence, this episode provides practical guidance to help make college a successful experience.
“You would rather have a plan and not need it than need a plan and not have it.” — Tricia Delaney
This episode of Beyond the Bleeds explores:
- Preparing for college with a bleeding disorder
- Building independence and managing your own healthcare
- Creating an emergency plan before arriving on campus
- Working with your HTC, campus health center, and disability office
- Tips for staying organized with medications, factor, and medical supplies
Support & Resources
Planning ahead can help make the transition to college safer and less stressful. Explore these resources mentioned in the episode.
📋 HOC College Prep Checklist
https://hemophiliaoutreach.org/college-prep-checklist/
🏥 CDC Hemophilia Treatment Center Directory
Find a Hemophilia Treatment Center near your college or anywhere in the United States:
https://www.cdc.gov/hemophilia/treatment/treatment-centers.html
Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?
Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage.
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