Blog

Part II
Today on Beyond the Bleeds, we’re thrilled to have Peggy Maier and Audrey Nuskiewicz sharing their poignant memories and impactful experiences during the Bad Blood Era. This challenging period in the bleeding disorders community saw contaminated blood products spread diseases like HIV and Hepatitis C. Peggy and Audrey delved deeply into their firsthand experiences as nurses, supporting their patients and community with unwavering dedication and care during these tumultuous times.

Understanding the Challenges of Aging with Bleeding Disorders The Impact of Aging on Bleeding DisordersAs individuals with bleeding disorders age, they may face unique challenges that require tailored care....

Understanding Bleeding Disorders in Children What Are Pediatric Bleeding Disorders?Bleeding disorders in children, such as hemophilia and Von Willebrand disease, are often inherited conditions that affect the...

Open Enrollment Season is approaching again! There are a few questions you need to ask when choosing an insurance plan if you or a family member have a bleeding disorder diagnosis. How do you get your...

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, is a genetic disorder that affects blood vessels. People with HHT often develop abnormal blood vessels called...

PETOSKEY, MI- Petoskey resident with Hemophilia B is the first patient in the state to receive gene therapy, HEMGENIX, since FDA approval. “With this treatment and the promise of actually feeling even just a...

Understanding Von Willebrand Disease Von Willebrand Disease (vWD) is one of the most common hereditary bleeding disorders, affecting both men and women equally. It occurs due to a deficiency or dysfunction of...

Glanzmann Thrombasthenia is a rare bleeding disorder that necessitates a nuanced approach to care and management. This detailed guide not only elucidates treatment strategies but also underscores the...

Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder, affecting both men and women. Despite its prevalence, myths and uncertainties surround its management and impact on daily life....

FIRST EVER HEMOPHILIA PATIENT TO RECEIVE GENE THERAPY SINCE FDA APPROVAL FOR IMMEDIATE RELEASE JUNE 20, 2023 GREEN BAY, WI- Wisconsin resident is the first ever hemophilia B patient to receive gene therapy...

We all can experience the feeling. It is the dark of winter, bitter cold outdoors, dark mornings, and you want to stay buried in the comfort of your bed. We experience more tiredness and having less gas in...

Strategies to boost patient confidence and resilience- by Leah Black Living with Hemophilia A can be overwhelming for patients and their families. Not only is it a serious disease that can lead to...

The Hemophilia Outreach Center (HOC) is a family-oriented organization committed to providing the highest quality, comprehensive medical care and advocacy for individuals with a bleeding disorder. Our...

The topic of health insurance causes eyes to glaze over and brains to overload. However, it is an essential piece of the puzzle regarding your health. Health care can be quite costly, especially when living...

The HOC nursing team often hears from patients struggling to tell the difference between a bruise and a bleed that might require treatment. It’s true that people without bleeding disorders can bruise easily...

Advocacy is a powerful way to make a lasting difference for the bleeding disorders community. Whether it’s attending events like Great Lakes Hemophilia Foundation's Wisconsin Advocacy Day or sharing your...

Understanding Von Willebrand Disease What is Von Willebrand Disease (VWD)?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of von Willebrand factor (VWF), a...

Understanding Bleeding Disorders What Are Bleeding Disorders?Bleeding disorders are a group of conditions that affect the way your blood normally clots. These disorders can lead to prolonged bleeding after an...

Understanding the Importance of Physical Activity Benefits of Exercise for Bleeding DisordersPhysical activity is essential for maintaining overall health, but it plays a particularly important role for...

Glanzmann Thrombasthenia (GT) is a rare genetic bleeding disorder characterized by the inability of platelets to properly form blood clots, leading to prolonged bleeding episodes. Fortunately, recent...

Administered in Green BayHEMGENIX is revolutionizing treatment with its groundbreaking one-time infusion that offers elevated and sustained factor IX levels for years. Approved by the FDA in 2022, HEMGENIX...

GREEN BAY, WI- Green Bay resident with Hemophilia A is the first patient in the state to receive gene therapy, Roctavian, since FDA approval. “It is just exciting to know how far medicine has come. I never...

Menorrhagia, commonly known as heavy menstrual bleeding, is a condition that poses a significant challenge to the well-being of many women, girls, and people who have or had the potential to menstruate or...

Hemophilia, a rare but significant bleeding disorder, requires nuanced understanding and specialized care. This guide, leveraging insights from the Hemophilia Outreach Center (HOC) and current medical...

Take good care of yourself when away from home whether on the road, at work or at school. Why?  Current evidence suggests that eating more vegetables, fruit, beans, legumes, seeds and nuts will reduce...

Get a reusable water bottle for both hot and cold beverages. We often get dehydrated, and this can make us feel fatigued. You can flavor water with flavor drops or fruit slices. Fill the bottle with sparkling...

Seasonal Affective Disorder (SAD), also commonly referred to as the “Winter Blues”, is real and affects many people during the long winter months. SAD can negatively impact a person’s mental health and have...

It’s Fall, Y’all!  Sweater weather has arrived and along with football games and falling leaves, this happens to be a great time of year to reassess our day-to-day nutrition.  Since fresh produce...

Did you know eating a diet high in vegetables is one of the best ways to prevent chronic disease and maintain a healthy weight? High vegetable consumption can lower blood pressure, reduce the risk of heart...

All of us have heard that we should “drink more water”, but why exactly is it so important? For all of us big or small, our bodies are made largely of water. Every cell, tissue and organ need water in order...

Foam rolling is a type of self massage (myofascial release) that uses a device to provide direct compression that helps release tension in the muscles, relieve muscle soreness and improve flexibility and...

Winter weather brings beautiful snow, cozy moments by the fire, and exciting outdoor activities. But for individuals with bleeding disorders, the colder months also come with added challenges. Icy sidewalks,...

Understanding Von Willebrand Disease and Its Treatment Needs What is Von Willebrand Disease?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of the von...

Innovative Treatments on the Horizon Bleeding disorders, which impair the body’s ability to clot blood, have long posed significant challenges for both patients and healthcare providers. Advances in bleeding...

Menorrhagia, or heavy menstrual bleeding, is a common condition that affects many people who menstruate, causing significant physical and emotional distress. Understanding the effective medical treatments...

Choosing the right hemophilia center is crucial for effective management and treatment of bleeding disorders. A specialized center provides comprehensive care tailored to meet the unique needs of individuals...

Hemophilia is a complex bleeding disorder requiring specialized management to maintain a high quality of life. Hemophilia treatment centers (HTCs) offer a...

For individuals and families navigating the complexities of hemophilia and other bleeding disorder diagnoses, finding a treatment center that offers comprehensive, personalized care is paramount. This...

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu disease, is a genetic disorder that affects blood vessels and can lead to significant health issues. Understanding the current...

Once again, the holidays are upon us and for many, 2021 will mark two years since we’ve gathered with those we love to celebrate the season.  And since we’ve had some time away from it all, this holiday...

Are you or your child getting ready to head off to college? It’s an exciting time but as someone with a bleeding disorder, there are things that need to be considered and planned for as you make this new...

HOC is excited to announce that we are now serving a new population within the bleeding disorders community. And June is HHT Awareness Month! Hereditary Hemorrhagic Telangiectasia (HHT) or Osler-Weber-Rendu...