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Today on Beyond the Bleeds, Heather and John welcome Sara Berger, Director and Senior Research Scientist at IBM, to discuss the growing role of artificial intelligence (AI) in healthcare. They explore how patients can use AI to better understand their health and what they should know before relying on these tools.
With a background in neuroscience, technology, and ethics, Sara explains how AI works and clears up common misconceptions. She shares examples of how AI already plays a role in everyday life and healthcare. Sara also discusses how patients can use these tools to understand medical terminology, explore health information, and prepare questions for appointments.
The conversation also covers the risks of using AI for medical information. Sara explains how AI can produce inaccurate answers and spread misinformation. She addresses privacy concerns when patients share personal health information with AI tools. For people with rare conditions like bleeding disorders, these challenges can be even greater. AI systems may have less reliable information about rare conditions than more common health concerns.
Most importantly, Sara encourages patients to use AI as a tool for understanding, not as a replacement for healthcare professionals. She explains why patients should verify information, protect their privacy, and consult their healthcare team before making medical decisions. Sara also looks ahead at the future of AI in healthcare. She shares why patients and providers should help shape how these technologies develop and how people use them.
“Use it as a starting point, not an ending point, and always verify everything.” — Sara Berger
This episode of Beyond the Bleeds explores:
- How artificial intelligence is being used in everyday life and healthcare
- Ways AI can help patients understand health information and prepare for medical appointments
- The risks of misinformation, inaccurate answers, and relying on AI for medical decisions
- Privacy concerns when sharing personal health information with AI tools
- The future of AI in healthcare and the importance of maintaining trust between patients and providers
Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?
Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we share real stories and helpful conversations to support families at every stage.
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