Today on Beyond the Bleeds, John and Heather welcome Andrea Buxton and Erica Brock to explore the critical process of transitioning healthcare for patients with bleeding disorders. Our conversation dives into the stages of transition from pediatric to adult care, community support, and the programs available to ease this process. The discussion emphasizes the challenges patients and their caregivers face and the importance of education in managing chronic conditions.
Year: 2021
Effective Treatments for Von Willebrand Disease: Guidelines and Options
Understanding Von Willebrand Disease and Its Treatment Needs What is Von Willebrand Disease?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of the von Willebrand factor (VWF), a protein essential for blood clotting....
Managing Bleeding Disorders in Children: Pediatric Care Tips and Strategies
Understanding Bleeding Disorders in Children What Are Pediatric Bleeding Disorders?Bleeding disorders in children, such as hemophilia and Von Willebrand disease, are often inherited conditions that affect the blood’s ability to clot. Children with bleeding disorders...
Beyond Heavy Periods: Exploring Menorrhagia and Bleeding Disorders with Andrea Buxton and Nora Schmitt
Today on Beyond the Bleeds, we sit down with Andrea Buxton, a nurse practitioner at the Hemophilia Outreach Center (HOC), and Nora Schmitt, a community member and patient advocate. We discuss the launch of HOC's new menorrhagia clinic in Green Bay, Wisconsin, diving...
Coping with Bleeding Disorders: Practical Lifestyle Tips for Daily Management
Understanding Bleeding Disorders What Are Bleeding Disorders?Bleeding disorders are a group of conditions that affect the way your blood normally clots. These disorders can lead to prolonged bleeding after an injury, surgery, or even without any apparent cause. The...
Beans, Lentils, and Beyond: Essential Nutrition Insights for Hemophilia Patients
Today on Beyond the Bleeds, Heather and John welcome Jill Larson, a nutritionist with the comprehensive care team at the Hemophilia Outreach Center in Green Bay. In this episode, Jill shares her invaluable insights on why nutrition is critical for those in the...
Facing Fears and Finding Friendship at Camp Klotty Pine with Alyssa, Eliot, and Elias Myrie
Today on Beyond the Bleeds, we welcome the Myrie family—Alyssa, Elias, and Eliot—to discuss their experiences at Camp Klotty Pine. Set in Wisconsin, this unique summer camp caters to children with bleeding disorders. It offers them a safe space to enjoy traditional camp activities like swimming, archery, and fishing while providing essential education on managing their conditions. Alyssa, Elias, and Elliot share their heartwarming stories, from overcoming homesickness to forming lifelong friendships with others with similar bleeding disorders.
Dental Hygiene Challenges and Solutions for the Bleeding Disorders Community with Bonnie Des Jardins
Today on Beyond the Bleeds, we welcomed Bonnie Des Jardins, a registered dental hygienist in Green Bay, Wisconsin. Bonnie shares her insights on the critical connection between oral and systemic health. She sheds light on the unique challenges and necessary precautions for dental care within the bleeding disorders community
Building the Foundation of Hemophilia Care in Green Bay with Co-Founder Peggy Maier
Today on Beyond the Bleeds, John and I welcome Peggy Maier, an extraordinary nurse and co-founder of the Hemophilia Outreach Center (HOC) in Green Bay, Wisconsin. We delve into Peggy’s inspirational journey, the founding of HOC, and her undying commitment to helping those with bleeding disorders.
From Parent to CEO: Jamison Buxton’s Hemophilia Journey and Leadership
Today on Beyond the Bleeds, John and Heather welcome Jamison Buxton, CEO of the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss his journey from a parent of a child with hemophilia to leading an organization dedicated to supporting those with bleeding disorders.
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