Today on Beyond the Bleeds, Heather and I welcome Amy Wilson, clinical social worker at the Center for Bleeding and Clotting Disorders at M Health Fairview in Minneapolis, Minnesota. We discuss the prevalence and impact of PTSD in the bleeding disorder community, the...
Year: 2021
Medicaid and Marketplaces Changing Landscape for Bleeding Disorders Community with Johanna Gray
Today on Beyond the Bleeds, John and I delve into the "One Big Beautiful Bill," a landmark legislation signed into law on July 4, 2025, and its far-reaching impact on individuals and families living with bleeding disorders. We break down what this trillion-dollar...
Nutritionist Advice for Getting the Most From Vitamins with Jill Larson
Today on Beyond the Bleeds, we’re joined by John and our returning guest Jill Larson, as we dig deep into the often-confusing world of vitamins. We explore what vitamins truly are, why they matter for our health, and how they interact in our bodies like instruments in a symphony. We break down the difference between fat-soluble and water-soluble vitamins, examine whether you really need supplements, and share practical tips for getting nutrients from your diet, especially for those of us in the bleeding disorder community.
Bridging Nursing Gaps with NWTC and Hemophilia Outreach Collaboration with Dr. Jacqueline Stewart
Today on Beyond the Bleeds, we sit down with Dr. Jacqueline Stewart, known to her students as Jackie, an Associate Degree Nursing Instructor at Northeast Wisconsin Technical College (NWTC). Together, we delve into the importance of bleeding disorder education in nursing, NWTC’s innovative approach to bridging classroom theory and real-world patient care, and the powerful partnership between NWTC and the Hemophilia Outreach Center. Our conversation highlights how immersive, patient-centered learning is equipping the next generation of nurses to deliver life-saving care and advocacy for those with bleeding disorders.
Caregivers Guide – Test Flipbook
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Bridging Hematology, Oncology, and Hemophilia – Inside the Green Bay Oncology and HOC Partnership with Dr. Ryan & Dr. Groteluschen
Today on Beyond the Bleeds, we dive into the evolving world of hematology and oncology collaboration and care with Dr. Matthew Ryan and Dr. David Groteluschen from Green Bay Oncology. We discuss the vital importance of specialized, comprehensive care for patients with bleeding disorders, the significance of early intervention, and how partnerships between treatment centers and oncology practices are expanding access and improving outcomes, even in some of the most rural regions. Our conversation goes beyond the clinical to highlight how support staff, research, care coordination, and community outreach shape a patient’s lifelong journey.
The Monthlies Project: Menstrual Health Advocacy with Liz Wollenberg & Alison Fiebig
Today on Beyond the Bleeds, we sit down with Liz Wollenberg, Chief Systems and Strategy Officer at Feeding America Eastern Wisconsin, and Alison Fiebig, Vice President of Strategy, Brand Marketing, and Communications at Emplify Health. Together, they are founding...
Navigating Sleep Challenges from Childhood to Adulthood
Today on Beyond the Bleeds, we’re joined by Dr. Bridget Freeman to explore the importance of sleep health—why it’s foundational to our overall well-being, how our sleep patterns evolve throughout a lifetime, and what we can do to optimize sleep for physical, mental, and emotional health. From the science of circadian rhythms to practical fixes for common sleep problems, we break down actionable steps for creating a better night’s rest and why you might never fully “catch up” on missed sleep.
Inside the World of Child Life Specialists with Chris Bivins
Today on Beyond the Bleeds, I’m joined by Chris Bivins, Child Life Specialist, to talk about the essential role Child Life professionals play in pediatric healthcare settings. We explore how Child Life Specialists help children and families navigate the challenges of illness, injury, and hospitalizations—ensuring that kids develop emotionally and socially, even amid medical treatments. We also discuss the powerful tools they utilize, how they collaborate with care teams and families, and what resources are available when a Child Life Specialist isn’t on site.
Embracing Summer Safely with a Bleeding Disorder
Summer is a time to enjoy sunshine, vacations, and quality moments with friends and family. It’s a season filled with outdoor adventures, travel, and well-deserved relaxation. But for individuals living with bleeding disorders, summer also brings unique challenges...
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