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Today on Beyond the Bleeds, John and Heather welcome Andrea Buxton and Erica Brock to explore the critical process of transitioning healthcare for patients with bleeding disorders. Our conversation dives into the stages of transition from pediatric to adult care, community support, and the programs available to ease this process. The discussion emphasizes the challenges patients and their caregivers face and the importance of education in managing chronic conditions.
“Transition is not just about moving from one doctor to another; it’s about learning to manage
your own healthcare needs.” – Andrea Buxton
Today on Beyond the Bleeds:
- Transitioning in healthcare involves shifting from pediatric to adult care and independently managing a bleeding disorder.
- Formal transition programs, like Minnesota Treatment Center’s transition day, are crucial in ensuring seamless care.
- The National Hemophilia Program Coordinating Center (NHPCC) aids treatment centers in developing consistent and supportive transition programs.
- Support from parents and caregivers is pivotal, gradually allowing young patients to take on more healthcare responsibilities.
- Quality Improvement (QI) projects include surveying parents to alleviate their anxieties about transitioning responsibilities to their children.
- Integrated primary care within hemophilia centers aims to streamline patient visits and minimize time off work or school.
- A comprehensive booklet and interactive materials help patients understand and manage their bleeding disorders effectively.
- Flexibility in the program accommodates patients’ varying developmental stages, ensuring a tailored approach to transitioning.
Resources Mentioned:
Hemophilia Outreach Center (HOC)
National Hemophilia Program Coordinating Center (NHPCC)
Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?
Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.
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Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay!
With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss!
Visit:
https://www.hemophiliaoutreach.org/events
to register today.
