Michigan’s First HEMGENIX Gene Therapy for Hemophilia B

The Founding Story of Hemophilia Outreach Center

Caring, Sharing, and Learning TogetherLong before there was a center, a building, or even a formal program, there were two nurses in Green Bay who saw a need and stepped in to meet it. Peggy Maier and Audrey Nuskiewicz were both Registered Nurses working in Pediatrics...

Why Primary Care Matters for People with Bleeding Disorders with Angie Beach

Today on Beyond the Bleeds, Heather and John are joined by Angie Beach, Family Nurse Practitioner at HOC, to explore the importance of primary care for people with bleeding disorders and how comprehensive care goes beyond managing a bleeding disorder alone. Drawing on...

Open Enrollment Is Coming: Help Us Keep Your Care on Track

Open enrollment season is approaching, and now is the time to start preparing for any upcoming changes to your health insurance coverage. For many individuals, Medicare Annual Enrollment runs from October 15 through December 7, while Marketplace (ACA) Open Enrollment...

Help Protect Our Community During Virus Season!

Respiratory illnesses such as influenza, COVID-19, and respiratory syncytial virus (RSV) commonly circulate during the colder months, especially as people are spending more times indoors. Symptoms may include fever, cough, sore throat, runny or stuffy nose, fatigue,...

Procedures and Bleeding Disorders: When to Contact Your HTC with Kristin Petrie

Today on Beyond the Bleeds, Heather and John are joined by Kristin Petrie, HOC Nurse Coordinator, to talk about what people with bleeding disorders should know before their next procedure and why contacting your Hemophilia Treatment Center ahead of time is so...

How Hemophilia Shapes a Family, Part 2 with Christopher George and Felicity Grajeda

Today on Beyond the Bleeds, Heather and John are joined once again by Christopher George and his daughter, Felicity Grajeda, for part two of their conversation exploring how hemophilia shapes a family and the lessons, experiences, and support that can carry from one...

How Hemophilia Shapes a Family, Part 1 with Christopher George and Felicity Grajeda

Today on Beyond the Bleeds, Heather and John are joined by Christopher George and his daughter, Felicity Grajeda, for part one of a two-part conversation exploring how hemophilia shapes a family and the different ways it can impact life from childhood through...

Building Stronger HTCs for Better Patient Care with Angela Blue

Today on Beyond the Bleeds, Heather and guest co-host Erica are joined by Angela Blue, Director of Member & Community Relations with the Hemophilia Alliance, for a conversation about the important work happening behind the scenes to support Hemophilia Treatment...

The College Checklist for Students with Bleeding Disorders with Tricia Delaney

Today on Beyond the Bleeds, Heather is joined by guest co-host Erica and HOC Nurse Coordinator Tricia Delaney for a timely conversation about preparing for college with a bleeding disorder. Using HOC's College Prep Checklist as a guide, Tricia shares practical advice...

It’s Okay to Not Be Okay: Mental Health and Bleeding Disorders with Robin Lambrecht

Today on Beyond the Bleeds, Heather and John are joined by HOC's Behavioral Health Specialist, Robin Lambrecht, for an important conversation about the connection between mental health and bleeding disorders. Robin shares how behavioral health extends far beyond a...

Petoskey man is first in state to receive HEMGENIX gene therapy — 9&10 News

Related Articles

BloodStream Gene Therapy Segment with Andrea Buxton — BloodStream Media

Green Bay resident becomes first Wisconsinite to receive gene therapy treatment for hemophilia A — WBAY

First Real-World Experience Administering Etranacogene Dezaparvovec Gene Therapy for People with Hemophilia B — American Journal of Hematology