Innovative Treatments on the Horizon Bleeding disorders, which impair the body’s ability to clot blood, have long posed significant challenges for both patients and healthcare providers. Advances in bleeding disorder research are crucial for developing innovative...
Open Enrollment Season is approaching again! There are a few questions you need to ask when choosing an insurance plan if you or a family member have a bleeding disorder diagnosis. How do you get your insurance? Do you get your insurance from an employer...
Understanding the Importance of Physical Activity Benefits of Exercise for Bleeding DisordersPhysical activity is essential for maintaining overall health, but it plays a particularly important role for individuals with bleeding disorders. Regular exercise helps to...
Menorrhagia, or heavy menstrual bleeding, is a common condition that affects many people who menstruate, causing significant physical and emotional distress. Understanding the effective medical treatments available can help manage symptoms and improve quality of life....
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, is a genetic disorder that affects blood vessels. People with HHT often develop abnormal blood vessels called telangiectasias and arteriovenous malformations (AVMs) that can cause...
Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you're managing hemophilia, von Willebrand disease, or any rare...
Glanzmann Thrombasthenia (GT) is a rare genetic bleeding disorder characterized by the inability of platelets to properly form blood clots, leading to prolonged bleeding episodes. Fortunately, recent advancements offer new hope for individuals living with GT....
Choosing the right hemophilia center is crucial for effective management and treatment of bleeding disorders. A specialized center provides comprehensive care tailored to meet the unique needs of individuals with hemophilia. What is a Hemophilia Center? A hemophilia...
PETOSKEY, MI- Petoskey resident with Hemophilia B is the first patient in the state to receive gene therapy, HEMGENIX, since FDA approval. “With this treatment and the promise of actually feeling even just a little better my hopes and dreams are already starting to...
Administered in Green BayHEMGENIX is revolutionizing treatment with its groundbreaking one-time infusion that offers elevated and sustained factor IX levels for years. Approved by the FDA in 2022, HEMGENIX has been the focus of extensive research for many years,...
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