Part II
Today on Beyond the Bleeds, weโre thrilled to have Peggy Maier and Audrey Nuskiewicz sharing their poignant memories and impactful experiences during the Bad Blood Era. This challenging period in the bleeding disorders community saw contaminated blood products spread diseases like HIV and Hepatitis C. Peggy and Audrey delved deeply into their firsthand experiences as nurses, supporting their patients and community with unwavering dedication and care during these tumultuous times.
General
Reflecting on Hemophiliaโs Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part I
Today on Beyond the Bleeds, weโre thrilled to have Peggy Maier and Audrey Nuskiewicz sharing their poignant memories and impactful experiences during the Bad Blood Era. This challenging period in the bleeding disorders community saw contaminated blood products spread diseases like HIV and Hepatitis C. Peggy and Audrey delved deeply into their firsthand experiences as nurses, supporting their patients and community with unwavering dedication and care during these tumultuous times.
Growth & Community Outreach at Wausauโs Hemophilia Center with Angie Farrar
Welcome to Beyond the Bleeds. Today, we sit down with Angie Farrar, lead nurse coordinator at the Hemophilia Outreach Centerโs Wausau location, to discuss the centerโs vital role in improving bleeding disorder care in central Wisconsin. We delve into the challenges patients face in rural areas and the significant strides made in education and outreach to better serve individuals with bleeding disorders.
Healthcare Independence and Transition Challenges with Heather & John
On Beyond the Bleeds, John and Heather take a different approach today by becoming both the host and the guest, diving deep into life transitions in healthcare. Previously, theyโve discussed the Hemophilia Outreach Center's support systems, but today, they broaden the...
Bleeding Disorders Advocacy: A Year-Round Engagement
Advocacy is a powerful way to make a lasting difference for the bleeding disorders community. Whether itโs attending events like Great Lakes Hemophilia Foundation's Wisconsin Advocacy Day or sharing your story directly with legislators, every effort contributes to...
The Impact of Gene Therapy with Dave Novak & Rochelle Ginter
Today on Beyond the Bleeds, we welcome Rochelle Ginter, RN, at the Hemophilia Outreach Center in Green Bay, Wisconsin, and David Novak, who shares his experience receiving gene therapy for hemophilia A. We delve into the mechanics of hemophilia A, the latest...
Winter Weather Tips for Those with Bleeding Disorders: Stay Safe and Prepared
Winter weather brings beautiful snow, cozy moments by the fire, and exciting outdoor activities. But for individuals with bleeding disorders, the colder months also come with added challenges. Icy sidewalks, slippery conditions, and the potential for falls can be...
Aging with Bleeding Disorders: Senior Care Tips and Considerations
Understanding the Challenges of Aging with Bleeding Disorders The Impact of Aging on Bleeding DisordersAs individuals with bleeding disorders age, they may face unique challenges that require tailored care. Factors such as joint health deterioration, increased risk of...
Living with Von Willebrand Disease: Management Tips and Lifestyle Advice
Understanding Von Willebrand Disease What is Von Willebrand Disease (VWD)?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of von Willebrand factor (VWF), a protein essential for blood clotting. Affecting both men and...
Hemophilia in the Classroom: Insights from Nurses, Parents & Patients
Today on Beyond the Bleeds, John and Heather sit down with Kelli Birk and Crosby Willett, alongside Tricia Delaney, a nurse at the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss the importance of school in services for children with bleeding disorders....
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