At Hemophilia Outreach Center, we're committed to more than just medicine — we're committed to people. Gene therapy is a groundbreaking treatment, but what makes it truly meaningful are the people behind it — the patients who face each day with courage, the care teams...
HOC Media
HOC’s Commitment to Women and Girls with Bleeding Disorders: A Call for Equality in Care
As we approach World Hemophilia Day on April 17th, 2025, the global bleeding disorders community is coming together to raise awareness and advocate for change. This year’s theme, “Access for all: Women and girls bleed too”, shines a much-needed spotlight on a critical...
Hemophilia Journey from Newborn Challenges to Care Coordination with Erin Wegner
Today, on Beyond the Bleeds, we share the experiences of Erin Wegner, a mother who navigates life with two sons diagnosed with hemophilia. Alongside Angie Farrar, lead nurse coordinator at the Wausau Hemophilia Outreach Center, Erin discusses the challenges and learning curves of her unexpected journey into the world of bleeding disorders, emphasizing the importance of specialized care and community support.
Reflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part II
Today on Beyond the Bleeds is part 2 of our “Reflections on Hemophilia’s Bad Blood Era” with Peggy Maier and Audrey Nuskiewicz, foundational Hemophilia Outreach Center (HOC) nurses. We delve into the challenges faced by the hemophilia community during this period, the impact of HIV/AIDS, and the resilience and hope that emerged in the face of adversity. Peggy and Audrey share their experiences as caregivers, advocates, and pillars of support for patients and families navigating uncharted territory.
Reflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part I
Today on Beyond the Bleeds, we’re thrilled to have Peggy Maier and Audrey Nuskiewicz sharing their poignant memories and impactful experiences during the Bad Blood Era. This challenging period in the bleeding disorders community saw contaminated blood products spread diseases like HIV and Hepatitis C. Peggy and Audrey delved deeply into their firsthand experiences as nurses, supporting their patients and community with unwavering dedication and care during these tumultuous times.
Growth & Community Outreach at Wausau’s Hemophilia Center with Angie Farrar
Welcome to Beyond the Bleeds. Today, we sit down with Angie Farrar, lead nurse coordinator at the Hemophilia Outreach Center’s Wausau location, to discuss the center’s vital role in improving bleeding disorder care in central Wisconsin. We delve into the challenges patients face in rural areas and the significant strides made in education and outreach to better serve individuals with bleeding disorders.
Healthcare Independence and Transition Challenges with Heather & John
On Beyond the Bleeds, John and Heather take a different approach today by becoming both the host and the guest, diving deep into life transitions in healthcare. Previously, they’ve discussed the Hemophilia Outreach Center's support systems, but today, they broaden the...
Bleeding Disorders Advocacy: A Year-Round Engagement
Advocacy is a powerful way to make a lasting difference for the bleeding disorders community. Whether it’s attending events like Great Lakes Hemophilia Foundation's Wisconsin Advocacy Day or sharing your story directly with legislators, every effort contributes to...
The Impact of Gene Therapy with Dave Novak & Rochelle Ginter
Today on Beyond the Bleeds, we welcome Rochelle Ginter, RN, at the Hemophilia Outreach Center in Green Bay, Wisconsin, and David Novak, who shares his experience receiving gene therapy for hemophilia A. We delve into the mechanics of hemophilia A, the latest...
Winter Weather Tips for Those with Bleeding Disorders: Stay Safe and Prepared
Winter weather brings beautiful snow, cozy moments by the fire, and exciting outdoor activities. But for individuals with bleeding disorders, the colder months also come with added challenges. Icy sidewalks, slippery conditions, and the potential for falls can be...
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