Understanding the Challenges of Aging with Bleeding Disorders The Impact of Aging on Bleeding DisordersAs individuals with bleeding disorders age, they may face unique challenges that require tailored care. Factors such as joint health deterioration, increased risk of...
Month: October 2021
Living with Von Willebrand Disease: Management Tips and Lifestyle Advice
Understanding Von Willebrand Disease What is Von Willebrand Disease (VWD)?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of von Willebrand factor (VWF), a protein essential for blood clotting. Affecting both men and...
Hemophilia in the Classroom: Insights from Nurses, Parents & Patients
Today on Beyond the Bleeds, John and Heather sit down with Kelli Birk and Crosby Willett, alongside Tricia Delaney, a nurse at the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss the importance of school in services for children with bleeding disorders....
Exploring Health Literacy and Resilience with Dr. Bridget Freeman
Today on Beyond the Bleeds, we welcome Dr. Bridget Freeman to discuss the essential elements of comprehensive health outcomes. We dive into the multifaceted approaches required to ensure long-lasting health improvements, encompassing agriculture, child education,...
Seamless Healthcare Transition for Bleeding Disorders with Andrea Buxton & Erica Brock
Today on Beyond the Bleeds, John and Heather welcome Andrea Buxton and Erica Brock to explore the critical process of transitioning healthcare for patients with bleeding disorders. Our conversation dives into the stages of transition from pediatric to adult care, community support, and the programs available to ease this process. The discussion emphasizes the challenges patients and their caregivers face and the importance of education in managing chronic conditions.
Effective Treatments for Von Willebrand Disease: Guidelines and Options
Understanding Von Willebrand Disease and Its Treatment Needs What is Von Willebrand Disease?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of the von Willebrand factor (VWF), a protein essential for blood clotting....
Managing Bleeding Disorders in Children: Pediatric Care Tips and Strategies
Understanding Bleeding Disorders in Children What Are Pediatric Bleeding Disorders?Bleeding disorders in children, such as hemophilia and Von Willebrand disease, are often inherited conditions that affect the blood’s ability to clot. Children with bleeding disorders...
Beyond Heavy Periods: Exploring Menorrhagia and Bleeding Disorders with Andrea Buxton and Nora Schmitt
Today on Beyond the Bleeds, we sit down with Andrea Buxton, a nurse practitioner at the Hemophilia Outreach Center (HOC), and Nora Schmitt, a community member and patient advocate. We discuss the launch of HOC's new menorrhagia clinic in Green Bay, Wisconsin, diving...
Coping with Bleeding Disorders: Practical Lifestyle Tips for Daily Management
Understanding Bleeding Disorders What Are Bleeding Disorders?Bleeding disorders are a group of conditions that affect the way your blood normally clots. These disorders can lead to prolonged bleeding after an injury, surgery, or even without any apparent cause. The...
Beans, Lentils, and Beyond: Essential Nutrition Insights for Hemophilia Patients
Today on Beyond the Bleeds, Heather and John welcome Jill Larson, a nutritionist with the comprehensive care team at the Hemophilia Outreach Center in Green Bay. In this episode, Jill shares her invaluable insights on why nutrition is critical for those in the...
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