GREEN BAY, WI- Green Bay resident with Hemophilia A is the first patient in the state to receive gene therapy, Roctavian, since FDA approval. āIt is just exciting to know how far medicine has come. I never thought in my lifetime a treatment like this would become...
Day: June 15, 2021
Finding the Right Hemophilia Treatment Center Near You
For individuals and families navigating the complexities of hemophilia and other bleeding disorder diagnoses, finding a treatment center that offers comprehensive, personalized care is paramount. This in-depth guide aims to illuminate the path to finding the right...
Glanzmann Thrombasthenia: Understanding Your Treatment Options
Glanzmann Thrombasthenia is a rare bleeding disorder that necessitates a nuanced approach to care and management. This detailed guide not only elucidates treatment strategies but also underscores the significant support network available through the Hemophilia...
Effective Strategies for Menorrhagia and Heavy Menstrual Bleeding: A Deeper Dive
Menorrhagia, commonly known as heavy menstrual bleeding, is a condition that poses a significant challenge to the well-being of many women, girls, and people who have or had the potential to menstruate or have the ability to menstruate (WGPPM). It goes beyond the...
Introduction to “HHT Treatment: What You Need to Know”
Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu disease, is a genetic disorder that affects blood vessels and can lead to significant health issues. Understanding the current treatments for HHT is crucial for those diagnosed with the...
Understanding and Managing Von Willebrand Disease
Von Willebrand Disease (VWD) is the most common hereditary bleeding disorder, affecting both men and women. Despite its prevalence, myths and uncertainties surround its management and impact on daily life. This comprehensive guide aims to demystify VWD, offering...
Navigating Medical Treatment for Hemophilia: A Comprehensive Guide
Hemophilia, a rare but significant bleeding disorder, requires nuanced understanding and specialized care. This guide, leveraging insights from the Hemophilia Outreach Center (HOC) and current medical institutions, offers a deep dive into managing hemophilia...
Aging and Bleeding Disorders
As our bleeding disorder populationās life expectancy continues to rise to that of the average American, our patients need to understand that they are at risk for the same disease states that over 50% of all Americans now...
First Ever Hemophilia Patient to Receive Gene Therapy Since FDA Approval
FIRST EVER HEMOPHILIA PATIENT TO RECEIVE GENE THERAPY SINCE FDA APPROVAL FOR IMMEDIATE RELEASE JUNE 20, 2023 GREEN BAY, WI- Wisconsin resident is the first ever hemophilia B patient to receive gene therapy since FDA approval. āI feel honored to be the first person to...
Every Meal, Every Snack, Have a Plant!
Take good care of yourself when away from home whether on the road, at work or at school. Why? Current evidence suggests that eating more vegetables, fruit, beans, legumes, seeds and nuts will reduce the risk of cardiovascular disease, diabetes, and certain...
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