FIRST EVER HEMOPHILIA PATIENT TO RECEIVE GENE THERAPY SINCE FDA APPROVAL FOR IMMEDIATE RELEASE JUNE 20, 2023 GREEN BAY, WI- Wisconsin resident is the first ever hemophilia B patient to receive gene therapy since FDA approval. “I feel honored to be the first person to...
Take good care of yourself when away from home whether on the road, at work or at school. Why? Current evidence suggests that eating more vegetables, fruit, beans, legumes, seeds and nuts will reduce the risk of cardiovascular disease, diabetes, and certain...
On November 22, 2022, the FDA approved Hemgenix®, an adeno-associated virus vector-based gene therapy indicated for the treatment of adults with Hemophilia B (congenital Factor IX deficiency) who: Currently use Factor IX (FIX) prophylaxis therapy, or Have current or...
Get a reusable water bottle for both hot and cold beverages. We often get dehydrated, and this can make us feel fatigued. You can flavor water with flavor drops or fruit slices. Fill the bottle with sparkling water, unsweetened tea, or coffee too. If you make...
Diet, Microbes, and Your Health In celebration National Nutrition Month, the Hemophilia Outreach Center’s Nutritionist, Jill, would like to share an informative presentation discussing how Microbes (certain bacteria’s) are connected to your health and well-being....
We all can experience the feeling. It is the dark of winter, bitter cold outdoors, dark mornings, and you want to stay buried in the comfort of your bed. We experience more tiredness and having less gas in the physical and emotional tank. So, the question becomes, how...
Seasonal Affective Disorder (SAD), also commonly referred to as the “Winter Blues”, is real and affects many people during the long winter months. SAD can negatively impact a person’s mental health and have long-lasting effects even into spring and summer. Symptoms a...
Once again, the holidays are upon us and for many, 2021 will mark two years since we’ve gathered with those we love to celebrate the season. And since we’ve had some time away from it all, this holiday season may just be the perfect time to make it all a little...
Strategies to boost patient confidence and resilience- by Leah Black Living with Hemophilia A can be overwhelming for patients and their families. Not only is it a serious disease that can lead to complications such as bleeding and joint damage, but the treatment...
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