October 10, 2024

Welcome to Beyond the Bleeds

Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you’re managing hemophilia, von Willebrand disease, or any rare bleeding condition, this space is for you. We’ll dive into personal stories, medical insights, and the latest in treatment advancements, fostering an environment where you feel heard and supported. Join us as we walk you through our mission to make life with bleeding disorders not just manageable, but powerful.

Recent Posts

Navigating Sleep Challenges from Childhood to Adulthood

Today on Beyond the Bleeds, we're joined by Dr. Bridget Freeman to explore the importance of sleep health—why it’s foundational to our overall well-being, how our sleep patterns evolve throughout a lifetime, and what we can do to optimize sleep for physical, mental,...

Inside the World of Child Life Specialists with Chris Bivins

Today on Beyond the Bleeds, I’m joined by Chris Bivins, Child Life Specialist, to talk about the essential role Child Life professionals play in pediatric healthcare settings. We explore how Child Life Specialists help children and families navigate the challenges of...

Embracing Summer Safely with a Bleeding Disorder

Summer is a time to enjoy sunshine, vacations, and quality moments with friends and family. It’s a season filled with outdoor adventures, travel, and well-deserved relaxation. But for individuals living with bleeding disorders, summer also brings unique challenges...

Caring for Mental Health in the Bleeding Disorders Community

Living with a bleeding disorder affects more than just the body. It impacts emotional and psychological well-being, as well. Managing a chronic condition like hemophilia or von Willebrand disease often comes with daily stress, uncertainty, and limitations that can...

Empowering Choice: Dave’s Story

At Hemophilia Outreach Center, we're committed to more than just medicine — we're committed to people. Gene therapy is a groundbreaking treatment, but what makes it truly meaningful are the people behind it — the patients who face each day with courage, the care teams...

Life After Infusions: Mason’s Story

At Hemophilia Outreach Center, we're committed to more than just medicine — we're committed to people. Gene therapy is a groundbreaking treatment, but what makes it truly meaningful are the people behind it — the patients who face each day with courage, the care teams...

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