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October 10, 2024

Welcome to Beyond the Bleeds

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Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you’re managing hemophilia, von Willebrand disease, or any rare bleeding condition, this space is for you. We’ll dive into personal stories, medical insights, and the latest in treatment advancements, fostering an environment where you feel heard and supported. Join us as we walk you through our mission to make life with bleeding disorders not just manageable, but powerful.

Recent Posts

Gene Therapy at HOC: Prepared, Professional, Personal

At Hemophilia Outreach Center, we're committed to more than just medicine — we're committed to people. Gene therapy is a groundbreaking treatment, but what makes it truly meaningful are the people behind it — the patients who face each day with courage, the care teams...

From Personal Experience to Organizational Mission

At Hemophilia Outreach Center, we're committed to more than just medicine — we're committed to people. Gene therapy is a groundbreaking treatment, but what makes it truly meaningful are the people behind it — the patients who face each day with courage, the care teams...

Healthcare Independence and Transition Challenges with Heather & John

On Beyond the Bleeds, John and Heather take a different approach today by becoming both the host and the guest, diving deep into life transitions in healthcare. Previously, they’ve discussed the Hemophilia Outreach Center's support systems, but today, they broaden the...

Bleeding Disorders Advocacy: A Year-Round Engagement

Advocacy is a powerful way to make a lasting difference for the bleeding disorders community. Whether it’s attending events like Great Lakes Hemophilia Foundation's Wisconsin Advocacy Day or sharing your story directly with legislators, every effort contributes to...

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Exploring Hemophilia from Camp Klotty Pine to Advocacy with Great Lakes Hemophilia Foundation

Exploring Hemophilia from Camp Klotty Pine to Advocacy with Great Lakes Hemophilia Foundation

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Hemophilia Journey from Newborn Challenges to Care Coordination with Erin Wegner

Reflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part II

Reflecting on Hemophilia’s Bad Blood Era with Peggy Maier & Audrey Nuskiewicz Part II

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