We know it can be difficult living with a bleeding disorder. Our comprehensive care
model services all of the patients’ needs, not just medical and physical ones.
Since HOC is a federally funded treatment center, we have access to grants which
allow us to provide affordable comprehensive care.
It can be challenging to find a physician that understands your bleeding disorder. Our Hematologists provide exceptional quality care throughout your lifetime. We strive on building relationships with patients and their families, all while remaining compassionate and approachable. Our hematologists take the time to answer all your questions, educate other physicians when appropriate, and help ensure high quality of care no matter what the situation presents.
Being diagnosed with a bleeding disorder can be scary and overwhelming. You are not alone. Our Nurse Coordinators will walk you through every step of your bleeding disorder journey. Our nurses assist through all stages of life from birth through end-of-life. With 24/7 coverage, you can be certain that there will always be someone on the other end of the phone to help. Whether it be educating patients, helping them advocate for their bleeding disorders, or coordinating care through major surgeries, our Nurse Coordinators will journey beside you.
Having a bleeding disorder does not make an individual prone to dental problems. Nonetheless, avoiding recommended preventative care can lead to oral bleeding complications. At HOC, our dental hygienist provides patients with a dental health assessment to assist in maintaining optimal oral health. This minimizes the risk of bleeding complications if dental problems emerge. We know that dental insurance coverage varies on an individual basis. Even if a patient does not have dental insurance, our dental hygienist will assist in finding access to appropriate care.
Life can be really challenging. If you need support to make things easier, you’re not alone. Millions of people every year see behavioral health professionals to help live healthier lives. The body and mind work together which is why mental health is just as important as physical health. HOC offers Behavioral Health Services for patients to help manage the challenges that come with living with a bleeding disorder. This service is available to patients and their immediate family.
Physician Dispensing Station
Factor Replacement Selection
HOC’s Courier Service
Clotting Factor Costs
Hospital Pharmacy Consignment
The Hemophilia Outreach Center does NOT carry any controlled substances.
The goal of physical therapy (PT) is to restore physical health, quality of life and overall wellness to the patient, while minimizing the risk of future injuries. For teenagers and young adults in the bleeding disorders community, performing regular flexibility and strengthening routines can help to prevent spontaneous bleeds. This also applies to our aging population. These same physical fitness routines are important to maintain range of motion.
HOC and its partners offer an array of financial assistance avenues. In most scenarios, there is an application process in which our Patient Assistance Coordinator will guide patients through the process. These programs can assist patients with rent, utilities, medical bills, or out-of-pocket expenses. Most programs are based on household size and income, however they do take the situational circumstances into account.
Our Program Coordinator meets with patients and their families to continuously enhance the understanding of the bleeding disorder community’s educational and sociological needs. Educational programs, support groups and activities are developed and implemented based off patient and family needs. Through a wide variety of programs offered, HOC’s goal is to improve quality of life for individuals and families living with a bleeding disorder.
When it comes to your bleeding disorder, healthy eating and weight are a vital part of a patient’s overall health. Greater weight leads to increased pressure on joints. This may potentially worsen and exacerbate damage to the joints. But food changes and weight loss can be difficult. HOC’s Registered Dietitian helps patients set attainable goals while finding the eating habits that best fits their lifestyle. The Registered Dietitian can assess, provide guidance and recommendations that focus on healthy food choices. These changes can lead to a positive impact on nutrition and body weight.
HOC understands that a bleeding disorder influences other areas of a patient’s life.
There are risks associated with any procedure, whether minor or major. For any procedure such as a colonoscopy up to open heart surgery, HOC NEEDS to be notified.
Our medical team will coordinate care which can greatly reduce any bleeding complications that could occur during and after a procedure.
HOC’s mission is more than just caring for individuals with a bleeding disorder; it is also to improve their care. We contribute to several ATHN studies, by collecting & reporting clinical data, monitoring patterns and ultimately improving care.
HOC is typically not involved in clinical trials, but we may be able to link patients who would like to be involved to other centers participating in trials. Participation may be limited due to inclusion/exclusion criteria.
Hemophilia Outreach Center began as a grassroots service, funded by a State grant, in 1974. Peggy Maier and Audrey Nuskiewicz, two experienced pediatric nurses, were recruited to establish a “clinic” for individuals with hemophilia and other bleeding disorders.
We are forever grateful to our founders for laying the foundation for innovation as HOC continues to grow and fulfill its commitment to serving the bleeding disorders community.