We know it can be difficult living with a bleeding disorder. Our comprehensive care
model services all of the patients’ needs, not just medical and physical ones.
Since HOC is a federally funded treatment center, we have access to grants which
allow us to provide affordable comprehensive care.
It can be challenging to find a physician that understands your bleeding disorders. Our Hematologists provide exceptional quality of care throughout the entire lifespan. They strive on building relationships with not only the patients, but their families as well, all while being both compassionate and approachable. Our hematologists take the time to answer all questions, and they will take the time to educate other physicians, when appropriate, to help ensure high quality of care no matter what the situation presents
Being diagnosed with a bleeding disorder can be very scary and overwhelming, especially when you are first diagnosed and don’t know where to turn. Our Nurse Coordinators are here to walk you through every step of your bleeding disorder care so that you are not alone. They assist through all stages of life including the birth of a child through the end-of-life. With 24/7 coverage, you can be certain that there will always be someone on the other end of the phone to help at any time. Whether it is educating patients, helping them advocate for their bleeding disorders or coordinating care through major surgeries, our nurse coordinators will be there through it all.
Having a bleeding disorder does not make an individual prone to dental problems. Nonetheless, avoiding recommended preventative care can lead to oral bleeding complications.
At HOC, our dental hygienist provides patients with a dental health assessment to assist in maintaining optimal oral health. This also minimizes the risk of bleeding complications if dental problems emerge.
We know that dental insurance coverage varies on an individual basis. Even if a patient does not have dental insurance, our dental hygienist will assist in finding access to appropriate care.
Life can be really challenging. If you need support to make things easier, you’re not alone. Millions of people every year see behavioral health professionals to help to lead healthier lives. The body and mind work together which is why mental health is just as important as physical health. HOC offers Behavioral Health Services for patients to help manage the challenges that come with living with a bleeding disorder. This service is available to patients and their immediate family.
The goal of physical therapy (PT) is to restore physical health, quality of life and overall wellness to the patient, while minimizing the risk of future injuries. For teenagers and young adults in the bleeding disorders community, performing regular flexibility and strengthening routines can help to prevent spontaneous bleeds. For older individuals with a bleeding disorder, these same routines are important to maintain the range of motion you have left if you suffered loss of motion from joint bleeds in previous years.
When it comes to your bleeding disorder, healthy eating and weight are a vital part of a patient’s overall health. Greater weight leads to increased pressure on joints. This may potentially worsen and exacerbate damage to the joints. But food changes and weight loss can be difficult. HOC’s Registered Dietitian helps patients set attainable goals while finding the eating habits that best fits their lifestyle. The Registered Dietitian can assess, provide guidance and recommendations that focus on healthy food choices. These changes can lead to a positive impact on nutrition and body weight.
HOC and its partners offer an array of financial assistance avenues. In most scenarios, there is an application process in which our Patient Assistance Coordinator will guide patients through the process. These programs can assist patients with rent, utilities, medical bills, or out-of-pocket expenses. Most programs are based on household size and income, however they do take the situational circumstances into account.
Insurance can be difficult to navigate and poor insurance coverage can lead to high out-of-pocket costs. Our Insurance Navigator Services are helpful when experiencing insurance changes. They also address barriers including access to healthcare, insurance benefits, and health equity.
These services are available at an individual’s annual exam. During this time patients can discuss any concerns or upcoming life changes that could affect your insurance or financial situation. Jobs changes, open enrollment and life transitions can bring lots of questions. HOC strives to be a resource to help you make informed decisions. Should something come up between annual visits, you can always contact us at any time to help guide you to resources and solutions.
Where you get your medication is your choice. You may be dictated through your insurance. If unhappy with current services, HOC can play an active role in pursuing other options.
Our genetic counselor’s main role is to help families bridge the gap between suspecting a bleeding disorder and the reality of a formal diagnosis. Regardless of an individual’s family history, genetic counseling and testing provides answers, helps family members, and empowers the next generation.
Our genetic counselor often works with the parents of an affected newborn or with a pregnant woman who has potential to pass on a bleeding disorder. Genetic counseling services also help female relatives understand their carrier status. For further questions regarding genetic testing, please contact our Genetic Counselor at (920) 965-0606.
Our Program Coordinator meets with patients & families to continuously enhance the understanding of the bleeding disorder community’s educational & sociological needs.With that information educational programs, support groups and activities are developed and implemented. Through the wide variety of programs offered, our goal is to improve quality for individuals & families living with a bleeding disorder.
HOC understands that a bleeding disorder influences other areas of a patient’s life.
There are risks associated with any procedure, whether minor or major. For any procedure such as a colonoscopy up to open heart surgery, HOC NEEDS to be notified.
Our medical team will coordinate care which can greatly reduce any bleeding complications that could occur during and after a procedure.
HOC’s mission is more than just caring for individuals with a bleeding disorder; it is also to improve their care. We contribute to several ATHN studies, by collecting & reporting clinical data, monitoring patterns and ultimately improving care.
HOC is typically not involved in clinical trials, but we may be able to link patients who would like to be involved to other centers participating in trials. Participation may be limited due to inclusion/exclusion criteria.
Hemophilia Outreach Center began as a grassroots service, funded by a State grant, in 1974. Peggy Maier and Audrey Nuskiewicz, two experienced pediatric nurses, were recruited to establish a “clinic” for individuals with hemophilia and other bleeding disorders.
We are forever grateful to our founders for laying the foundation for innovation as HOC continues to grow and fulfill its commitment to serving the bleeding disorders community.