The Hemophilia Outreach Center treats the following Diagnoses

We know it can be difficult living with a bleeding disorder. Our comprehensive care
model services all of the patients’ needs, not just medical and physical ones.

Since HOC is a federally funded treatment center, we have access to grants which
allow us to provide affordable comprehensive care.

Why choose Comprehensive Care?

Meet your Comprehensive Care Team

Understand your comprehensive care teams role in patient care

It can be challenging to find a physician that understands your bleeding disorder. Our Hematologists provide exceptional quality care throughout your lifetime. We strive on building relationships with patients and their families, all while remaining compassionate and approachable. Our hematologists take the time to answer all your questions, educate other physicians when appropriate, and help ensure high quality of care no matter what the situation presents.

Being diagnosed with a bleeding disorder can be scary and overwhelming. You are not alone. Our Nurse Coordinators will walk you through every step of your bleeding disorder journey. Our nurses assist through all stages of life from birth through end-of-life. With 24/7 coverage, you can be certain that there will always be someone on the other end of the phone to help. Whether it be educating patients, helping them advocate for their bleeding disorders, or coordinating care through major surgeries, our Nurse Coordinators will journey beside you.

Having a bleeding disorder does not make an individual prone to dental problems. Nonetheless, avoiding recommended preventative care can lead to oral bleeding complications. At HOC, our dental hygienist provides patients with a dental health assessment to assist in maintaining optimal oral health. This minimizes the risk of bleeding complications if dental problems emerge. We know that dental insurance coverage varies on an individual basis. Even if a patient does not have dental insurance, our dental hygienist will assist in finding access to appropriate care.

Click here to learn about our dental day program.

Life can be really challenging. If you need support to make things easier, you’re not alone. Millions of people every year see behavioral health professionals to help live healthier lives. The body and mind work together which is why mental health is just as important as physical health. HOC offers Behavioral Health Services for patients to help manage the challenges that come with living with a bleeding disorder. This service is available to patients and their immediate family.

Physician Dispensing Station

  • Physician Dispensing Station allows us to provide patients with fast, efficient, accurate, and up-to-date dispenses. Through assay management, HOC is able to reduce overall costs to payers, employers, and the patient. Physician dispensing, commonly referred to as “in-office dispensing”, highlights that factor medications can be dispensed directly to the patient by our clinic nurses, when overseen by the physician.

Factor Replacement Selection

  • Selecting a factor replacement medication can be overwhelming. Our medical team of experts are here to help individuals select a product that fits the patient’s needs.

HOC’s Courier Service

  • HOC’s courier service provides factor deliveries in Wisconsin and the Upper Peninsula of Michigan, with the ability to ship factor products outside the courier service area.

Clotting Factor Costs

  • As a grant recipient of the 340b program, HOC has the ability to provide clotting factor products to patients at the lowest prices.These cost savings help lower patient, employer, and payer (Insurance Company) financial responsibilities and drives overall healthcare costs down.

Hospital Pharmacy Consignment

  • HOC maintains an allotment of products that can be utilized by area hospitals for in-patient and out-patient use. HOC can supply area hospitals with on-demand needs, as well as consignment, to reduce the burden of maintaining inventory of costly medication that may not be used.

The Hemophilia Outreach Center does NOT carry any controlled substances.

The goal of physical therapy (PT) is to restore physical health, quality of life and overall wellness to the patient, while minimizing the risk of future injuries. For teenagers and young adults in the bleeding disorders community, performing regular flexibility and strengthening routines can help to prevent spontaneous bleeds. This also applies to our aging population. These same physical fitness routines are important to maintain range of motion.

  • Insurance can be difficult to navigate, and poor insurance coverage can lead to high out-of-pocket costs. Our Insurance Navigator Services are helpful when experiencing insurance changes.  They help address barriers including access to healthcare, insurance benefits, and health equity.
  • These services are available at an individual’s annual exam. During this time patients can discuss any concerns or upcoming life changes that could affect your insurance or financial situation. Jobs changes, open enrollment and life transitions can bring lots of questions.  HOC strives to be a resource to help you make informed decisions. Should something come up between annual visits, you can always contact us at any time to help guide you to resources and solutions.
  • Where you get your medication is your choice. You may be dictated through your insurance. If unhappy with current services, HOC can play an active role in pursuing other options.

HOC and its partners offer an array of financial assistance avenues. In most scenarios, there is an application process in which our Patient Assistance Coordinator will guide patients through the process. These programs can assist patients with rent, utilities, medical bills, or out-of-pocket expenses. Most programs are based on household size and income, however they do take the situational circumstances into account. 

  • Our genetic counselor’s main role is to help families bridge the gap between suspecting a bleeding disorder and the reality of a formal diagnosis. Regardless of an individual’s family history, genetic counseling and testing provide the patient and their family with answers and empower the next generation.
  • Our genetic counselor often works with the parents of an affected newborn or with a pregnant woman who has the potential to pass on a bleeding disorder to her child(ren). Genetic counseling services also help female relatives understand their carrier status. 

Our Program Coordinator meets with patients and their families to continuously enhance the understanding of the bleeding disorder community’s educational and sociological needs. Educational programs, support groups and activities are developed and implemented based off patient and family needs. Through a wide variety of programs offered, HOC’s goal is to improve quality of life for individuals and families living with a bleeding disorder.

When it comes to your bleeding disorder, healthy eating and weight are a vital part of a patient’s overall health. Greater weight leads to increased pressure on joints. This may potentially worsen and exacerbate damage to the joints. But food changes and weight loss can be difficult. HOC’s Registered Dietitian helps patients set attainable goals while finding the eating habits that best fits their lifestyle. The Registered Dietitian can assess, provide guidance and recommendations that focus on healthy food choices. These changes can lead to a positive impact on nutrition and body weight.

Coordination of Care

HOC understands that a bleeding disorder influences other areas of a patient’s life. 

There are risks associated with any procedure, whether minor or major. For any procedure such as a colonoscopy up to open heart surgery, HOC NEEDS to be notified. 

Our medical team will coordinate care which can greatly reduce any bleeding complications that could occur during and after a procedure.

Research & Clinical Trials

HOC’s mission is more than just caring for individuals with a bleeding disorder; it is also to improve their care. We contribute to several ATHN studies, by collecting & reporting clinical data, monitoring patterns and ultimately improving care. 

HOC is typically not involved in clinical trials, but we may be able to link patients who would like to be involved to other centers participating in trials. Participation may be limited due to inclusion/exclusion criteria. 

Where it all began

Hemophilia Outreach Center began as a grassroots service, funded by a State grant, in 1974. Peggy Maier and Audrey Nuskiewicz, two experienced pediatric nurses, were recruited to establish a “clinic” for individuals with hemophilia and other bleeding disorders.  

We are forever grateful to our founders for laying the foundation for innovation as HOC continues to grow and fulfill its commitment to serving the bleeding disorders community.