This is an educational program for individuals with a bleeding disorder between ages 7-22. It’s an opportunity to educate patients and families about how to self-infuse. This program will also give patients and families the opportunity to practice their infusion skills with a hemophilia treatment center nurse present.
The idea is to give the individual with a bleeding disorder the opportunity to practice their self-infusion skills outside of bleeding disorders camp. Using a setting such as an individual’s hemophilia treatment center, will provide a safe, familiar environment, surrounded by expert staff that are involved in their care. This will allow the patient and caregiver to practice self-infusion techniques safely. Considering parents/caregivers are not at bleeding disorders camp, this will also expose parents to the idea of transitioning and training their child to do their own infusions.