Patient Support

HOC participates in multiple initiatives that advocate for the needs and interests of the bleeding disorders community. It is important that the members of the bleeding disorders community be involved in advocacy initiatives because nobody can capture the unique circumstances of a patient’s story better than the patients themselves.

We know that education about bleeding disorders goes beyond informing the patient’s immediate family. In-services are a great avenue to empower and share resources with teachers and other caregivers in order to navigate having a student with a bleeding disorder.

This is an educational program for individuals with a bleeding disorder between ages 7-22. It’s an opportunity to educate patients and families about how to self-infuse. This program will also give patients and families the opportunity to practice their infusion skills with a hemophilia treatment center nurse present.

Calling all Sophomores-Seniors and college students who like free money! Learn about the resources and information needed to take advantage of the educational and scholarship opportunities available to the bleeding disorders community.

Physical activity is important for everyone, especially for individuals with a bleeding disorder. HOC provides the bleeding disorders community with opportunities to participate in sports, such as golf, that are defined as “safe sports” by the National Hemophilia Foundation.

Proper and adequate amounts of physical fitness leads to better health outcomes for all individuals. In the past, the HOC has offered yoga and other fitness programs here at the Center. We know that for many people getting to Green Bay for fitness programming may not always be feasible. Therefore, we want to give all patients the opportunity to engage in physical fitness routines, in the area in which they live.

Educational conferences are full of interesting sessions and networking activities for all members of the bleeding disorders community. Everyone is able to find something that sparks their interest. Individuals and families can find sessions on nearly every aspect of living with a bleeding disorder, from basics of a diagnosis to the latest treatment options.

The goal of Camp is to enrich the lives of individuals with a bleeding disorder, ages 7-15, through inclusion, empowerment, and the development of knowledge and life skills that lead to living independently.

Our Mom-to-Mom program is a support group that is specifically designed for mothers who have a child with a bleeding disorder.

This group is for men in the generation before Prophylaxis was a standard of care. Our goal is to provide a healthy environment to share similar experiences and discuss topics such as joint damage and limited range of motion from treating bleeds on demand.