October 10, 2024

Welcome to Beyond the Bleeds

Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you’re managing hemophilia, von Willebrand disease, or any rare bleeding condition, this space is for you. We’ll dive into personal stories, medical insights, and the latest in treatment advancements, fostering an environment where you feel heard and supported. Join us as we walk you through our mission to make life with bleeding disorders not just manageable, but powerful.

Recent Posts

Latest Advances in Bleeding Disorder Research

Innovative Treatments on the Horizon Bleeding disorders, which impair the body’s ability to clot blood, have long posed significant challenges for both patients and healthcare providers. Advances in bleeding disorder research are crucial for developing innovative...

2025 Open Enrollment

Open Enrollment Season is approaching again! There are a few questions you need to ask when choosing an insurance plan if you or a family member have a bleeding disorder diagnosis. How do you get your insurance? Do you get your insurance from an employer...

Menorrhagia: Exploring Effective Medical Treatments

Menorrhagia, or heavy menstrual bleeding, is a common condition that affects many people who menstruate, causing significant physical and emotional distress. Understanding the effective medical treatments available can help manage symptoms and improve quality of life....

Addressing HHT Disease: Current Treatments and Innovations

Hereditary Hemorrhagic Telangiectasia (HHT), also known as Osler-Weber-Rendu syndrome, is a genetic disorder that affects blood vessels. People with HHT often develop abnormal blood vessels called telangiectasias and arteriovenous malformations (AVMs) that can cause...

Welcome to Beyond the Bleeds

Welcome to Beyond the Bleeds! In this very first episode, John and I are excited to introduce ourselves and lay the foundation for a community centered around life with bleeding disorders. Whether you're managing hemophilia, von Willebrand disease, or any rare...

Glanzmann Thrombasthenia: New Horizons in Treatment

Glanzmann Thrombasthenia (GT) is a rare genetic bleeding disorder characterized by the inability of platelets to properly form blood clots, leading to prolonged bleeding episodes. Fortunately, recent advancements offer new hope for individuals living with GT....

Finding the Best Hemophilia Center for Your Needs

Choosing the right hemophilia center is crucial for effective management and treatment of bleeding disorders. A specialized center provides comprehensive care tailored to meet the unique needs of individuals with hemophilia. What is a Hemophilia Center? A hemophilia...

First Michigan Resident Dosed with HEMGENIX in Green Bay

PETOSKEY, MI- Petoskey resident with Hemophilia B is the first patient in the state to receive gene therapy, HEMGENIX, since FDA approval. “With this treatment and the promise of actually feeling even just a little better my hopes and dreams are already starting to...

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