- Hemophilia A (Factor VIII deficiency)
- Hemophilia B (Factor IX deficiency)
- Carrier of Hemophilia
- Von Willebrand Disease
- Platelet Deficiencies
- Hereditary Hemorrhagic Telangiectasia (HHT)
- Acquired Hemophilia
A bleeding disorder means the blood does not clot properly due to a deficiency of clotting factors.
- Bleeds can occur anywhere inside or outside of the body. Bleeds on the outside of the body are much easier to identify as signs are visible (i.e. blood, purple and/or dark blue bruising, swelling, etc.)
- Signs of an internal bleed may include: swelling, redness, pain, warm to the area, decreased mobility in extremities, bright red or tar-like, black stool (Gastrointestinal bleed), confusion, blurry vision, slurred speech, headache, etc. (Brain bleed)
- Not all individuals with a bleeding disorder require medication.
- Medication will depend on the type of bleeding disorder and the severity.
We are able to provide any clotting factor that has been approved by the FDA and is available on the market.
HOC coordinates with patients to obtain the medication needed whether patients get the medication through HOC or a Specialty Pharmacy (dependent on insurance).
Each patient will be seen based on their specific plan of care. All patients under the age of 5 are seen every 6 months or more often as needed. The majority of patients are seen once per year and as needed.
HOC provides 24/7 On-Call Coverage. Patients will call HOC’s main number (920-965-0606) and an answering service will take your information and page the on-call nurse/ physician who will call you within 15 minutes.
- HOC is not currently participating in any clinical trials. If this is something patients feel strongly about participating in, please speak with one of HOC’s Registered Nurses.
- HOC does participate in observational studies. Our Nurse Coordinators would be happy to discuss all available opportunities at the patient’s next visit.
Call the Hemophilia Outreach Center (920-965-0606). Our staff will be happy to assist in getting scheduled.
Be assessed and given tools/recommendations by each comprehensive care team member, which includes
- Physical Therapist
- Dental Hygienist
- Behavioral Health Specialist
- Genetic Counselor
- Patient Assistance Navigator
- Program Coordinator
HOC offers Behavioral Health Services for patients to help manage the challenges that come with living with a bleeding disorder. This service is available to patients and their immediate family. We also offer a Mom-to-Mom support group that provides an opportunity to meet and share your personal stories with other moms in our community.