Advocacy is a powerful way to make a lasting difference for the bleeding disorders community. Whether it’s attending events like Great Lakes Hemophilia Foundation's Wisconsin Advocacy Day or sharing your story directly with legislators, every effort contributes to...
Today on Beyond the Bleeds, we welcome Rochelle Ginter, RN, at the Hemophilia Outreach Center in Green Bay, Wisconsin, and David Novak, who shares his experience receiving gene therapy for hemophilia A. We delve into the mechanics of hemophilia A, the latest...
Winter weather brings beautiful snow, cozy moments by the fire, and exciting outdoor activities. But for individuals with bleeding disorders, the colder months also come with added challenges. Icy sidewalks, slippery conditions, and the potential for falls can be...
Understanding the Challenges of Aging with Bleeding Disorders The Impact of Aging on Bleeding DisordersAs individuals with bleeding disorders age, they may face unique challenges that require tailored care. Factors such as joint health deterioration, increased risk of...
Understanding Von Willebrand Disease What is Von Willebrand Disease (VWD)?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of von Willebrand factor (VWF), a protein essential for blood clotting. Affecting both men and...
Today on Beyond the Bleeds, John and Heather sit down with Kelli Birk and Crosby Willett, alongside Tricia Delaney, a nurse at the Hemophilia Outreach Center in Green Bay, Wisconsin, to discuss the importance of school in services for children with bleeding disorders....
Today on Beyond the Bleeds, we welcome Dr. Bridget Freeman to discuss the essential elements of comprehensive health outcomes. We dive into the multifaceted approaches required to ensure long-lasting health improvements, encompassing agriculture, child education,...
Today on Beyond the Bleeds, John and Heather welcome Andrea Buxton and Erica Brock to explore the critical process of transitioning healthcare for patients with bleeding disorders. Our conversation dives into the stages of transition from pediatric to adult care, community support, and the programs available to ease this process. The discussion emphasizes the challenges patients and their caregivers face and the importance of education in managing chronic conditions.
Understanding Von Willebrand Disease and Its Treatment Needs What is Von Willebrand Disease?Von Willebrand Disease (VWD) is a genetic bleeding disorder caused by a deficiency or dysfunction of the von Willebrand factor (VWF), a protein essential for blood clotting....
Understanding Bleeding Disorders in Children What Are Pediatric Bleeding Disorders?Bleeding disorders in children, such as hemophilia and Von Willebrand disease, are often inherited conditions that affect the blood’s ability to clot. Children with bleeding disorders...
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