Podcast: Download
Today on Beyond the Bleeds, we sit down with Andrea Buxton, a nurse practitioner at the Hemophilia Outreach Center (HOC), and Nora Schmitt, a community member and patient advocate. We discuss the launch of HOC’s new menorrhagia clinic in Green Bay, Wisconsin, diving into the complexities of diagnosing and treating excessively heavy menstrual periods. From understanding the “7 to 1 rule” of menorrhagia to the significant role of self-advocacy and community awareness, this episode sheds light on an often-overlooked aspect of women’s health.
Andrea Buxton is a dedicated nurse practitioner at the Hemophilia Outreach Center in Green Bay. Her expertise in uncovering and managing bleeding disorders has been pivotal in diagnosing many individuals who, like Nora Schmitt, have struggled with undiagnosed symptoms for years. Andrea’s commitment to education and patient care is making a profound impact on community health.
“Advocacy is crucial; don’t let dismissive attitudes from healthcare professionals prevent you from getting the care you need.” – Nora Schmitt
Today on Beyond the Bleeds:
- Menorrhagia is described by the “7 to 1 rule”: periods lasting over seven days, changing protection every two hours, or passing clots the size of a quarter or larger.
- Heavy menstrual periods can lead to other health issues, like iron deficiency and anemia.
- Approximately one-third of young individuals with heavy menstrual cycles may have an underlying bleeding disorder.
- HOC’s menorrhagia clinic offers affordable testing options and engages actively with local gynecologists for better referrals.
- Delayed diagnosis is common, with the CDC noting an average 16-year gap between onset and diagnosis for von Willebrand disease.
- Initial testing includes basic coagulation labs, thyroid levels, blood count, and iron levels, with further specialized tests if necessary.
- Treatment options vary from hormone therapies, such as oral contraceptives and IUDs, to medications like Lysteda, with one-year supply plans and follow-ups.
- Resources like the Foundation for Women and Girls with Bleeding Disorders and the National Bleeding Disorders Foundation offer educational support and information on local clinics.
Guest Contact Information:
Andrea Buxton: Hemophilia Outreach Center (HOC) https://www.hocgb.org
Resources Mentioned:
Foundation for Women and Girls with Bleeding Disorders: https://www.fwgbd.org
National Bleeding Disorders Foundation: https://www.hemophilia.org
CDC Treatment Centers Directory: https://www.cdc.gov/ncbddd/hemophilia/treatment.html
Looking for practical tips, expert advice, and a sense of community while living with or supporting someone with a bleeding disorder?
Subscribe to Beyond the Bleeds, the podcast that explores life with hemophilia, von Willebrand disease, and other rare conditions. Hosted by Heather Hansen and John Mazzariello, we bring you real stories, expert insights, and heartfelt conversations designed to help you navigate life Beyond the Bleeds.
Apple | Spotify | iHeart | Amazon Music | Stitcher | Pandora | Deezer
Don’t miss out on the Hemophilia Outreach Center’s Winter Education Program on December 7th, 2024, at the Oneida Hotel in Green Bay!
With inspiring presentations, fun activities for kids, and a special visit from Santa, it’s an event you won’t want to miss!
Visit:
https://www.hemophiliaoutreach.org/events
to register today.
