Resource Links

To learn more about all bleeding disorders, we’ve provided the links below to helpful web resources:

Hemophilia Federation of America

A national organization that assists and advocates for the bleeding disorders community.

National Hemophilia Foundation

Dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.

Great Lakes Hemophilia Foundation

Dedicated to advancing the quality of life of individuals and families affected by hemophilia or other blood disorders by providing a broad range of services and programs while supporting research to improve care and to find a cure.

The Hemophilia Alliance

Provides member Hemophilia Treatment Center with resources and services to sustain the Comprehensive Care Model for individuals with bleeding and clotting disorders.

Advocacy Corner

US House of Representatives Directory
US Senate Directory

Patient Notification System

A free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.

Hemophilia Emergency Care

A reference for medical professionals

Centers for Disease Control and Prevention (CDC)

A part of the U.S. Department of Health and Human Services, the CDC is the primary Federal agency for conducting and supporting public health activities in the United States.