Resource Links

To learn more about all bleeding disorders, we’ve provided the links below to helpful web resources:

Hemophilia Federation of America

A national organization that assists and advocates for the bleeding disorders community.
http://hemophiliafed.org

National Hemophilia Foundation

Dedicated to finding better treatments and cures for bleeding and clotting disorders and to preventing the complications of these disorders through education, advocacy and research.
http://www.hemophilia.org

Great Lakes Hemophilia Foundation

Dedicated to advancing the quality of life of individuals and families affected by hemophilia or other blood disorders by providing a broad range of services and programs while supporting research to improve care and to find a cure.
http://www.glhf.org

The Hemophilia Alliance

Provides member Hemophilia Treatment Center with resources and services to sustain the Comprehensive Care Model for individuals with bleeding and clotting disorders.
http://www.hemoalliance.org

Advocacy Corner

US House of Representatives Directory http://www.house.gov
US Senate Directory http://www.senate.gov

Patient Notification System

A free, confidential, 24 hour communication system providing information on plasma-derived and recombinant analog therapy withdrawals and recalls.
http://www.patientnotificationsystem.org

Hemophilia Emergency Care

A reference for medical professionals
http://www.hemophiliaemergencycare.com

Centers for Disease Control and Prevention (CDC)

A part of the U.S. Department of Health and Human Services, the CDC is the primary Federal agency for conducting and supporting public health activities in the United States.
http://www.cdc.gov/ncbddd/hbd/hemophilia.htm